I wish someone had told me: A companion for parents new to epilepsy

When your child has their first seizure, everything changes in an instant.

The questions come fast.
The fear comes faster.
And suddenly, you are standing in a world no one prepared you for.

You search for answers. You search for reassurance.
But what you often find is clinical, overwhelming… or missing what you truly need most.

This book is the one I wish someone had placed in my hands 32 years ago.

Written by a mother who has walked this path for over three decades, I Wish Someone Had Told Me is not a medical manual filled with jargon and instructions. It is a steady, honest companion for the early days of an epilepsy diagnosis—and the years that follow.

Inside, you will find the things no one tells you:

• The emotional impact of your child’s diagnosis—and how to steady yourself through it
• The quiet fears and unanswered questions that come in the night
• How epilepsy can affect your child’s identity, confidence, and place in the world
• The reality of prejudice, misunderstanding, and exclusion—and how to face it
• The strength, resilience, and unexpected hope that can grow alongside this journey

This is a book about living with epilepsy—not just understanding it.

It offers gentle reassurance, hard-won insight, and the comfort of knowing you are not alone.

If you are at the beginning of this journey, this book will meet you there.
If you are further along, it will remind you that what you feel is valid—and shared.

Because sometimes, what we need most is not more information…
but someone who understands.

This book is for you if:

• Your child has recently been diagnosed with epilepsy
• Your child has experienced their first seizure and you feel overwhelmed
• You are searching for guidance beyond medical facts
• You want to feel less alone in what you are facing

You are not alone.
And you never were.